This is the worst part when I accidentally ingest gluten and absolutely the hardest thing to explain to people who don’t have a gluten issue~ the ‘brain fog’. This article adds to growing research into an often cited but hard to study complaint of brain fog in celiacs and those gluten intolerant. They liken the brain fog to a .05 blood alcohol level, which is an interesting attempt to try to wrap some definition around something as hard to grasp as ‘fog’ but I would classify it as that feeling when you are getting sick and feverish and your brain just feels like it needs a nap before computing, but maybe that’s because gluten makes me tired, oh so tired, and so all I think about are naps. Probably everyone experiences it a bit differently, but it certainly points to early detection being more and more important if we want our children to have the best experience as possible in school. The article notes that they are still not sure why that happens since one theory was a lack of micronutrients making it to the brain when the digestive system is impaired, but that did not in fact seem to be the case. Another theory has to do with the gut bacteria, always super important when talking about brain health, but it could also be the gluten itself. Whatever it is, I’m just glad enough people have cited the issued that it’s being studied.
Tag: Coeliac disease
Gluten Free in Louisville, KY
Part of the reason I haven’t written much lately has to do with a trip to see my family in Louisville, KY, which turned out to be a very easy place to visit with multiple food intolerances in our crew. The other reason is the sheer craziness of summer with two high-energy boys~ it takes some time to adjust from school year days to summer days and honestly, I’m still adjusting. But, here’s what you will find in Louisville if you head that way (maybe in May…?) It is the Derby City after all.
Annie May’s Sweet Café is a gluten and nut free place that also has a large selection of vegan items. We went there for lunch and immediately regretted having not gone earlier in the trip. My son thought their vegan cream of broccoli soup was ‘epic’ and three of us got sandwiches we very much enjoyed and I was the only one of the three who is even gluten intolerant. The desserts we ate were delicious~ mostly cookies with cream in the middle, some vegan and some not depending on the person. My sons and I had the vegan kind which were dipped in chocolate too and probably the most decadent thing I’ve had in years. I don’t know what the vegan cream was in the middle but it definitely tasted like the real thing and I did not ask because if I knew how to make those things I might never leave my kitchen again.
Just down the road is Bluegrass Burgers which advertises on its sign outside, “Gluten free buns and beers” but it isn’t just buns and beers actually because I asked about the veggie patty and the black bean patty (they have both!) and those were also gluten-free and vegan. They were nice and patient about my questions, something that can be hard to find at restaurants where the going trend is to hate on people with food intolerances. They were extremely friendly and their food was great but there is one warning, their fries are way too good. Seriously, if you don’t want to eat a ton of them, just say no because once you start it’s all over~ they are seasoned to perfection and more addictive than chocolate covered cashews. Highly recommend this place. (And chocolate covered cashews for that matter.)
And of course there’s pizza. There are several places that have gluten-free options, but we chose Blaze Pizza because they have vegan cheese, all the pizza pies are individual size, and they cook them quickly in a wood fire so there (theoretically) isn’t much wait time. I was impressed that when I ordered the gluten-free crusts and vegan cheeses that they asked me if they needed to change gloves when handling those pizzas. They knew what they were doing when it came to allergies and I felt quite safe feeding their food to my kids and eating it myself. We liked the taste but it kind of reminded me of Chuck E. Cheese pizza, which isn’t necessarily a bad thing, something about it was just similar…the thinner crust, snappier cheese, slightly sweet tomato sauce. But if that isn’t to your taste, there are plenty of other pizza places that have gluten-free crust options, such as Mellow Mushroom, Impellizzeris, Puccini’s, Uncle Maddio’s, and Cottage Inn Pizza, so basically wherever you are in Louisville you are never far from gluten-free crust.
Something else you are never far from in Louisville are natural foods stores, so in a pinch you can always find allergy free food at Whole Foods, Lucky’s Market, or shop local and visit Rainbow Blossom at one of their five locations.
A surprising amount of allergy-friendly food can be found at the most unusual place of all, and I say that mostly because the town’s name is Santa Claus but also because the amusement park there, Holiday World, is, well, an amusement park (and water park) which generally aren’t hubs of allergy free dining.
This place is about 70 miles from Louisville and well worth the trip if you are traveling with kids or just like rides, water parks, and Christmas music in July. Just check out this list of allergy-free foods that you can get there and you’ll be adding Santa Claus, Indiana to your must-do list. The only thing I caution is to have the list handy with you before you go in to order because the people behind the counter weren’t always up-to-date on the offerings. There seemed to be one person in charge who handled the allergic folks and the rest of them waved her down to deal with us. That was fine with me, as long as there was one person dedicated to keeping us safe I was thoroughly impressed. We also had to wait extra time for the allergy free food so another caution is to go before your four-year old is in low-sugar-sunburnt-over-tired-and-hungry-tantrum-mode, but really it wasn’t too long of a wait, 15 minutes maybe. Of course 15 minutes with a hungry child is a lot longer than 15 minutes with just yourself to worry about, so you’ve been forewarned. But both my sons said the place was better than Disney Land, so check it out.
I’m sure there are plenty of other restaurants that accommodate gluten intolerant people but I just want to highlight one more because their menu is very clear with calling out gluten-free items, along with vegan, vegetarian, pescatarian, and whatever other kind of ~ian you want to call yourself, they’ve heard it all before. Ramsi’s Café will fill your worldly cravings when you’ve tried all the gluten-free pizza (impossible!) and eaten all the burgers on gluten-free buns that you can handle. Kids are welcome but if you are going to leave them behind for an evening out with your significant other, this is the place to go. When you are finished with dinner be sure to walk up and down Bardstown Road for some fun shopping and people watching, or grab a movie at the nearby Baxter Avenue Theaters. Enjoy!
Gluten Intolerant Symptoms
Schar just shared this infographic on their Facebook page. If you don’t already follow them, I heartily recommend doing so if you like nice visuals along with your gluten-free tidbits. And if you are planning a visit to Italy, this is definitely a company to know because as I understand it, they have played a major role in making the land of pasta a safe place for Celiacs and the like. As far as the picture below goes, I can check off more than half those symptoms myself~ how about you?
Adjusting to a Gluten-Free Diet
There are many guides to help newly diagnosed celiacs and gluten intolerant people but I know when you are first figuring it all out it feels like you are the only person in the world changing your diet and lifestyle. There will most likely be favorite meals you are giving up, familiar restaurants, and things like weekly meet-ups and dinner parties need to be rethought. Things you never had to think about before suddenly need attention, everyday habits, social rituals, and even the chores of shopping and cooking scream for a revamp. It’s a lot, and it can be overwhelming, but hopefully it will help to know that many people have been there, with their miner’s lamps on before you, walking through the dark and leaving notes. First of all, make a list of all the things you can eat. It’s so easy to focus on the food/foods that need to be eliminated and feel like everything is off-limits, but in reality there will always be a lot more food on the OK list than on the ‘must avoid’ list. It is important to figure out where the hidden gluten might be, like soy sauce, fake meat products like soy hotdogs, and oat products, but it is equally important to understand there are things like wheat free tamari, 
and safe oat products 
. (Unless you react to the similar protein that is found in oats the same way you react to gluten. Some people can eat certified gluten-free oat products just fine, while others cannot.) Beyond the products that are made to be gluten-free, of which you will find just about anything you can think of, there are foods that are naturally gluten-free and they are still there for you, so go ahead and eat all the French fries and corn tortillas you want. Most natural foods stores, like Whole Foods, would be happy to have a knowledgeable employee walk around with you to show you the gluten-free items and they will also know which are the best sellers, so if you don’t know which bread to try first just ask what the most popular brand is and start with that one. Calling ahead to find out when the best time to come in for some personal attention would be advised and you might even be able to do that at a regular grocery store~ depends on the place. A local Co-op here has monthly(?) food tours around their stores to highlight gluten-free things, or sometimes there are other themes, but the point is you might find something similar in your own local store. Speaking of that local co-op, it is called PCC and they have a webpage dedicated to gluten-free info and so does Whole Foods. Both of those places have many recipes that are labeled gluten-free and are a great place to find healthy foods in general. Trader Joe’s also has a gluten free list and other special diet lists and I recommend you look at your local favorite store’s website to see what they have available. Also check out Urban Spoon for information on restaurants and bakeries that are gluten-free friendly and find some places to visit sooner rather than later so when the inevitable time arrives when someone asks to meet for lunch you will have a place to suggest. Delicious living, a magazine you may have at some point seen in a natural foods store, has a guide for gluten-free living and there are several magazines dedicated to food allergies, but Living Without is the most popular one. There are blogs, social media groups, and online gluten-free stores to also offer assistance and advice, recipes and in some cases, coupons. In short, you aren’t alone and once you get into a gluten-free groove, it’s really not all that hard and you will find the amount you feel better outweighs any missing of old foods by so much that you truly don’t miss them.
Celiac Awareness Month
Did you know all children in Italy are automatically screened for Celiac? They, as a society, are much more aware of gluten issues in general which is about reason number 172 that I would like to be there right now, although with the sun warming up around here Washington feels pretty good. It’s been a long grey winter though and I just don’t trust this sunshine to stick around long. Whatever the weather where you are, check out this infographic that Gluten dude is kindly sharing:
I’ve never been tested for celiac but as a gluten intolerant person, I can attest to a very large proportion of these.
Brain on Gluten cont.~ News from Living Without Magazine
| Neurologic Effects of Celiac Disease |
| A study featured at the International Celiac Disease Symposium looked at neurological dysfunction in celiac disease. More than half of the study’s 73 participants—newly diagnosed adults at a celiac clinic in the U.K.—had neurological symptoms. These included frequent and intractable headaches, balance problems and sensory symptoms. White matter abnormalities were spotted in the brain scans of a number of these participants and some had TG6 antibodies. (TG6 antibodies have been linked to neurological dysfunction in celiac disease.) Findings suggest that neurological dysfunction is common in newly diagnosed celiacs, write researchers. |
| A U.S. study, also featured at ICDS, found that neurocognitive effects like brain fog are common after exposure to gluten in those with celiac disease and non-celiac gluten sensitivity alike. A whopping 89 percent of celiacs and 95 percent of those with non-celiac gluten sensitivity reported experiencing neurocognitive effects due to gluten, specifically, difficulty concentrating, forgetfulness, grogginess, detachment and mental confusion. Symptoms often began 30 minutes to an hour after gluten exposure and lasted several days. Results were based on a preliminary online survey completed by 1,143 individuals with celiac disease and 253 with non-celiac gluten sensitivity. More work is planned.
This is the exact article I found in my email box this morning from Living Without. Fascinating. |
Early Afternoon Pick-Me-Up
Just had to share my latest favorite afternoon snack. Coffee and protein powder. I know, it sounds wrong but it tastes so right! I add ice to the above and blend it into something that tastes similar to a Frappuccino but has 17g of protein (I just use one scoop~ the directions call for 2!) and lots of other good things like micronutrients and super greens. I figure if I’m going to have coffee in the afternoon anyway, might as well make it extra healthy.
And consider this a public service announcement~ Have you had your iron checked lately? Did you know gluten sensitive people are almost always iron deficient? And vegetarians really need to work to get the recommended daily dose too, but I don’t know about anyone else but no doctor, ever, has checked my iron. Not even the naturopath I see! She recommended my boys take Floradix Iron (nasty liquid stuff which they hate) because of their gluten intolerance so I did a bit of research and decided I needed to take it myself. My goodness, what a difference it makes! I have more energy, consistent energy, and I don’t feel like fainting when I ‘get up too fast ‘~so I’m now a fan of the nasty liquid stuff. I have probably been deficient all my life considering most of it has been spent eating a vegetarian diet (more like a Pastafarian diet in my younger years, as my friend pointed out) and have the gluten issue. So anyway, if you think this might apply to you, ask your doctor! And if you go the Flora route, make sure to get the gluten-free one (if you need it) because there is one that is and one that is not. It is worth it.
Probiotics for Food Allergies and Intolerances
My sister sent me this article the other day and I thought it worth sharing. It is called What Really Causes Celiac Disease? and it has a different message than I have seen before. It basically (and I’m giving a very small synopsis of this) says that traditional thought on Celiac disease is that some people have the gene for it, and of those people, some of them have the disease triggered by something. In other words, not everyone with the gene has the disease, so: gene + the trigger = Celiac. They are now thinking there is more to it than that, in fact billions more. “Billions?” you may ask, but yes, when discussing probiotics we get into big numbers. Unfortunately, the modern diet and the modern obsession with antibiotics and antibacterial everything means those big numbers are dangerously low. (Probiotics are things like acidofilus and bifidus which create yogurt and other foods.) This article singles out bifidus as an important player in keeping our digestive systems healthy and allergy/intolerant free. They are still learning about the connections between probiotics and dietary issues, but in the meantime I am going to take in as much as I can, and certainly make sure my kids do too. So far they do not seem to be gluten intolerant like I am, but I’m going to take any step I can that might help keep it that way.
Sourdough the Answer for Gluten Intolerance?
A couple of days ago I was sitting in a doctor’s office when I spotted a Whole Living magazine which was a welcome diversion. I don’t often see those lying around so I was happily surprised, yet far more surprised by what I actually read. There was an article about a baker making sourdough bread with regular wheat that apparently gluten intolerant people can eat. The story goes on to explain about the starter and yeast and other things, but the gist of it was that at least one Santa Monica baker has a technique that has gluten intolerant people lining up for miles around, and it also talks about ancient wheat varieties versus the modern ones. Here’s the article so you can read it too, and join me in my plan to move to Santa Monica, or at least find out more about this technique. It sounds like at least a lot more people are thinking about this epidemic in gluten intolerance and trying to do something about it. (Yay!) The bummer for me though is the fact I was not tested for Celiac Disease when diagnosed with gluten intolerance. I just asked the doctor (whose office I was in reading the above article) about getting tested now and she said I would have to go on a gluten diet again before being able to get an accurate answer. That bites! I didn’t even ask how long I’d have to eat gluten (and feel rotten) because my immediate thought was about the feeling rotten part. She said as long as I don’t know I just have to stay off gluten entirely and forever~ which makes these ancient wheats and sourdough starter prospects bittersweet. It makes me wish I’d demanded to be tested way back when the first GI doctor I saw told me it didn’t matter because whether I was a celiac or just gluten intolerant all I could do either way was stay away from wheat, and that I didn’t look like a celiac b/c they are normally blonde and pale. (That still cracks me up.) At the time I wanted to know for certain because I thought it important for my kids since it is a hereditary disease, but I let him talk me out of sticking a long scope down my throat into my small intestine. Honestly, it didn’t take long for him to convince me that was unnecessary. Oh well. I guess I can always try these new things and see how I feel which sounds a lot easier than eating a bunch of gluten just in order to take a test. Looks like the Santa Monica farmer’s market is now on my “must go to” list now.
Gluten Free in Disneyland
Traveling is always going to be one step harder for those of us with food allergies, but at least us gluten intolerant people are becoming more and more recognized in the restaurant world. I am completely aware we annoy a lot of chefs, sorry, but I’m pretty sure I am speaking for more than myself when I say, we didn’t ask to be gluten intolerant and if we could eat anything we wanted without feeling ill, we most certainly would! But annoyed or not, more and more menus are prepared with us in mind, whether the menu is a separate one or one where the gluten-free meals are marked, and traveling with at least this particular food allergy is easier than ever. I am happy to report that Disneyland was remarkably easy to navigate with gluten intolerance. As long as you can make it through the throngs of people, you can find gluten-free food. A little research and planning definitely helps though, so here are some tips~ First of all, make your dinner reservations ahead of time. You can email them (dine@disneyland.com) and in the email (with location, time, date, name) let them know the food issues your party has. Second of all, contact the special diets dining services (DLR.Special.Diets@disney.com) and let them know all of your dinner reservations and they can advise both you and the chefs. They can only help you with the actual park restaurants though, not the downtown Disney district ones. This was extremely helpful the one night we ate in the hotel at Goofy’s cafe which is a buffet style dinner with characters walking around. When I checked in the chef was alerted to come talk to me, which I almost declined because I hate to be a bother but I’m so glad I did not. He offered to make me either rice, veggies, and a meat of my choice or a gluten-free pizza. I was confused because it was a buffet, and he said that he’d be happy to talk me through the items of the buffet but since it leaves his control he cannot guarantee the items are in fact not cross contaminated. That made sense but I wanted to see what was available anyway, and he pointed out all the gluten-free items, and also all the things I might expect to be gluten-free but were not, such as the steamed veggies had been dipped in pasta water, and all the salad dressings had hidden croutons that had fallen in. He was very helpful and I thoroughly enjoyed my meal there. At Tortilla Jo’s the gluten-free meals are clearly marked with an asterisks by them, and there was a large selection. At Naples Ristorante the waiter just told me what I could and could not get, which mostly turned out to be gluten-free pasta with any sauce they had available. To be honest this was my most boring meal and the rudest staff, but everyone else loved their meals so I can’t not recommend it. The last night we ate at Rainforest cafe and the manager came over to talk to me about what I could and could not safely ingest. He actually did not inspire much confidence as he looked so frightened I felt like offering him a sip of my wine, so maybe he was new…? I don’t know, but all I wanted was a soup and salad and both were in fact gluten-free (with a certain dressing that is) so it worked out. For breakfasts and lunches we ate snacky stuff (I brought Udi’s bagels and travel peanut butter) and bought smaller meals. You can actually get a gluten-free guide to the park at Disneyland’s courthouse on Maine Street but each 
time I looked in there was a long line so I did not bother even though I was very interested in what it said. (Were all those people gluten-free? What else does one do at the Disneyland Courthouse? Apply for a marriage licence with Mickey and Minnie as witnesses? Change your name to Tinkerbell? Ask for a judgement in a ride dispute?) Anyway, 3 days of Disneyland and I don’t feel one bit gluten-fied. That is indeed…magical Continue reading “Gluten Free in Disneyland”
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